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Journal of Pediatric Ethics, Volume 1, Number 4

Children with Differences of Sexual Development

Intersex Children and Medical Epistemology: Moving from Interests to Rights

Ian D. Wolfe


The Microethics of Informed Consent for Early Feminizing Surgery in Congenital Adrenal Hyperplasia

Katharine B. Dalke and Arlene B. Baratz

The Irrelevance of Data to the Ethics of Intersex Surgery

Samuel Reis-Dennis and Elizabeth Reis

The Family Voice

Our Beautiful Child

Anonymous Parents

Parenting Children Intersex Children: Sensitive Medical Care and Peer Support that Make the Difference

Anonymous Parent

Clinical Reports and Narratives

Genital Ambiguity at Birth: Ethical Issues in the Management of Children with Differences of Sexual Development, also Known as Intersex

Asma Fazal

Supporting Families: Lessons Learned from Parents’ Narrative Experiences

Abby Davis



Journal of Pediatric Ethics, Volume 1, Number 3

Advance Care Planning and End of Life

Advance Care Planning and End of Life

Maurice G. Sholas


Children’s Views on Death and Dying: An Overview and Ethical Focus on Advance Care Planning Communication with Children

Ashley Lanzel and Katharine E. Brock

Parental “Holding and Letting Go” in End-of-Life Decision Making in the Neonatal Intensive Care Unit

Lisa C. Freitag

Mature Minors, Mature Decisions: Advance Care Planning for Adolescent Patients with Life-Limiting Illness

Jennifer Needle, Maureen Lyon, Donald Brunquell, and Catherine Heith

Re-Examining the Ethics of Clinical Trial Approval in a Gene-Targeted Era through a Case-Based Approach: Exploring the Implications of the n = 1 Batten Disease Trial

Danielle G. Rabinowitz

The Family Voice

The Most Difficult Decision We Ever Had to Make

 Kari Olavson

Precious Life; Precious Loss

Ellen Beaudry



Journal of Pediatric Ethics, Volume 1, Number 2

Complexities of Communication in Pediatric Medicine

    Introduction to the Issue
            Maurice G. Sholas


Your Child Does Not Have Chronic Lyme Disease: A Commentary on Communication, Beneficence, and Consent

Erin King

Pediatric Oncology Careproviders’ Attitudes on and Perceptions of Assent

Camille Lucjak, K. Jane Lee, and Kellie R. Lang

Difficult Conversations in the Ambulatory Pediatric Setting

Sheldon Berkowitz

Caring for Patients and Families in Challenging Circumstances: Preparing for and Engaging in Difficult Conversations

Theresa M. Huntley

A Critical Analysis of Futility Discourse in Pediatric Critical Care

Ian Wolfe

The Family Voice

Dads Are Parents, Too

Paige Schram

A Successful Failure

Beth Wakefield

Without Regret

Jennifer Wagner



Journal of Pediatric Ethics, Volume 1, Number 1

Bias in Pediatric Medicine

From the Editors

Nneka Sederstrom and Michael Sprehe


Gatekeeping and Bias Against Pediatric Risk in Solid Organ Transplant

    Aaron G. Wightman and Simon P. Horslen

Cultural Bias in American Medicine: The Case of Infant Male Circumcision

    Brian D. Earp and David M. Shaw

Partial Survivors: The Brokenness of Intact Survival

    Paul C. Mann

If Truth Be Told: Paternal Nondisclosure and Neonatal Herpes Simplex Virus Infections

    William Sveen, Meera Sury, and Jennifer Needle

"An Opportunity to Fail": An Examination of Bias in Pediatric Residents’ Case Presentations

    Hellen Ransom and Ronald M. Perkin

The Ethical Implications of Bias in Counseling Parents of Children with Trisomy 13 and 18

    Rebecca J. Benson, Laura A. Shinkunas, and Joy Salls

Caregivers’ Bias and Communication at Patient "Hand-Off": The Benefits of the Bring it Bedside Program

    Linda Lefrak and Rachael Lamsal

The Family Voice

Mother Love

    Perla Morley

Desperation. Exhaustion. Fear.

    Julie Martindale

Perfect "Children’s Parents"

    Stacy Holzbauer

Continuing Medical Education

CME Test for the Journal of Pediatric Ethics, Volume 1, Number 1