Inside this Issue
Volume 2,
Number 1,
Summer 2022
Ethical Issues in Partnering with
Families
Everyday Ethics and Partnering with Families in Children’s
Hospitals
Ian D. Wolfe
Feature
Do the Rules Always Apply? An Analysis of Exceptions to a
COVID19-Era Pediatric Visitation Policy
Ashley Shim, Madison P. Searles, Roger Wong, and
Amy E. Caruso Brown
Clinical Report
Paternal Rights: The Ethics of Misunderstanding the “Legal
Right
to a Child”
Ian D. Wolfe and Doug Turk
The Family Voice
Transparency Conversations that Build Strong Partnerships
Amanda Bekric
Help Me Understand—Contemplating a Novel Therapy Versus
Waiting and Hoping
Beth Wakefield
Inside this Issue
Volume 1, Number 4, Spring 2021
Children with Differences of Sexual Development
Intersex Children and Medical Epistemology: Moving from
Interests to Rights
Ian D. Wolfe
Features
The Microethics of Informed Consent for Early Feminizing
Surgery in Congenital Adrenal Hyperplasia
Katharine B. Dalke and Arlene B. Baratz
The Irrelevance of Data to the Ethics of Intersex Surgery
Samuel Reis-Dennis and Elizabeth Reis
The Family Voice
Our Beautiful Child
Anonymous Parents
Parenting Children Intersex Children: Sensitive Medical Care
and Peer Support that Make the Difference
Anonymous Parent
Clinical Reports and Narratives
Genital Ambiguity at Birth: Ethical Issues in the Management
of Children with Differences of Sexual Development, also Known as Intersex
Asma Fazal
Supporting Families: Lessons Learned from Parents’ Narrative
Experiences
Abby Davis
Inside this Issue
Volume 1, Number 3, Spring 2020
Advance Care Planning and End of Life
Advance Care Planning
and End of Life
Maurice G. Sholas
Features
Children’s Views on
Death and Dying: An Overview and Ethical Focus on Advance Care Planning
Communication with Children
Ashley Lanzel and
Katharine E. Brock
Parental “Holding and
Letting Go” in End-of-Life Decision Making in the Neonatal Intensive Care
Unit
Lisa C. Freitag
Mature Minors, Mature
Decisions: Advance Care Planning for Adolescent Patients with Life-Limiting
Illness
Jennifer Needle,
Maureen Lyon, Donald Brunquell, and Catherine Heith
Re-Examining the Ethics
of Clinical Trial Approval in a Gene-Targeted Era through a Case-Based
Approach: Exploring the Implications of the n = 1 Batten Disease
Trial
Danielle G. Rabinowitz
The Family Voice
The Most Difficult
Decision We Ever Had to Make
Kari Olavson
Precious Life; Precious
Loss
Ellen Beaudry
Contact us
Children's Minnesota
Clinical
Ethics Program
2525 Chicago Avenue South
Inside this Issue
Volume 1,
Number 1, Fall 2017
Bias in Pediatric Medicine
From the Editors
Nneka Sederstrom and Michael Sprehe
Features
Gatekeeping and Bias Against Pediatric Risk in Solid
Organ Transplant
Aaron G. Wightman and Simon P.
Horslen
Cultural Bias in American Medicine: The Case of Infant
Male Circumcision
Brian D. Earp and David M. Shaw
Partial Survivors: The Brokenness of Intact Survival
Paul C. Mann
If Truth Be Told: Paternal Nondisclosure and Neonatal
Herpes Simplex Virus Infections
William Sveen, Meera Sury, and
Jennifer Needle
"An Opportunity to Fail": An Examination of Bias in
Pediatric Resident Case Presentations
Hellen Ransom and Ronald M. Perkin
The Ethical Implications of Bias in Counseling Parents
of Children with Trisomy 13 and 18
Rebecca J. Benson, Laura A. Shinkunas,
and
Joy Salls
Caregivers’ Bias and Communication at Patient
"Hand-Off": The Benefits of the Bring it Bedside Program
Linda Lefrak and Rachael Lamsal
The Family Voice
Mother Love
Perla Morley
Desperation. Exhaustion. Fear.
Julie Martindale
Perfect "Children’s Parents"
Stacy Holzbauer
Inside this Issue
Volume 1,
Number 2, Winter 2019
Complexities of Communication in Pediatric Medicine
Introduction to the Issue
Maurice G. Sholas
Features
Your Child Does Not Have Chronic Lyme Disease:
A Commentary on Communication, Beneficence, and
Consent
Erin King
Pediatric Oncology Careproviders’ Attitudes on
and Perceptions of Assent
Camille Lucjak, K. Jane Lee, and Kellie R.
Lang
Difficult Conversations in the Ambulatory
Pediatric Setting
Sheldon Berkowitz
Caring for Patients and Families in Challenging
Circumstances: Preparing for and Engaging in Difficult Conversations
Theresa M. Huntley
A Critical Analysis of Futility Discourse in
Pediatric Critical Care
Ian Wolfe
The Family Voice
Dads Are Parents, Too
Paige Schram
A Successful Failure
Beth Wakefield
Without Regret
Jennifer Wagner
