Inside this Issue


Volume 2, Number 1, Summer 2022

Ethical Issues in Partnering with Families
    Everyday Ethics and Partnering with Families in Children’s

    Ian D. Wolfe

    Do the Rules Always Apply? An Analysis of Exceptions to a

    COVID19-Era Pediatric Visitation Policy
    Ashley Shim, Madison P. Searles, Roger Wong, and Amy E. Caruso Brown

Clinical Report
    Paternal Rights: The Ethics of Misunderstanding the “Legal Right

    to a Child”
    Ian D. Wolfe and Doug Turk

The Family Voice
    Transparency Conversations that Build Strong Partnerships
    Amanda Bekric

    Help Me Understand—Contemplating a Novel Therapy Versus

    Waiting and Hoping
    Beth Wakefield


Inside this Issue


Volume 1, Number 4, Spring 2021

Children with Differences of Sexual Development

Intersex Children and Medical Epistemology: Moving from Interests to Rights

Ian D. Wolfe



The Microethics of Informed Consent for Early Feminizing Surgery in Congenital Adrenal Hyperplasia

Katharine B. Dalke and Arlene B. Baratz


The Irrelevance of Data to the Ethics of Intersex Surgery

Samuel Reis-Dennis and Elizabeth Reis


The Family Voice

Our Beautiful Child
Anonymous Parents


Parenting Children Intersex Children: Sensitive Medical Care and Peer Support that Make the Difference

Anonymous Parent


Clinical Reports and Narratives

Genital Ambiguity at Birth: Ethical Issues in the Management of Children with Differences of Sexual Development, also Known as Intersex

Asma Fazal


Supporting Families: Lessons Learned from Parents’ Narrative Experiences

Abby Davis

Inside this Issue


Volume 1, Number 3, Spring 2020


Advance Care Planning and End of Life

Advance Care Planning and End of Life

Maurice G. Sholas



Children’s Views on Death and Dying: An Overview and Ethical Focus on Advance Care Planning Communication with Children

Ashley Lanzel and Katharine E. Brock


Parental “Holding and Letting Go” in End-of-Life Decision Making in the Neonatal Intensive Care Unit

Lisa C. Freitag


Mature Minors, Mature Decisions: Advance Care Planning for Adolescent Patients with Life-Limiting Illness

Jennifer Needle, Maureen Lyon, Donald Brunquell, and Catherine Heith


Re-Examining the Ethics of Clinical Trial Approval in a Gene-Targeted Era through a Case-Based Approach: Exploring the Implications of the n = 1 Batten Disease Trial

Danielle G. Rabinowitz


The Family Voice

The Most Difficult Decision We Ever Had to Make

Kari Olavson


Precious Life; Precious Loss

Ellen Beaudry


Contact us




Children's Minnesota

Clinical Ethics Program

2525 Chicago Avenue South

Mail Stop: 17-750

Minneapolis, MN 55404

Inside this Issue


Volume 1, Number 1, Fall 2017


Bias in Pediatric Medicine

From the Editors

Nneka Sederstrom and Michael Sprehe



Gatekeeping and Bias Against Pediatric Risk in Solid Organ Transplant

    Aaron G. Wightman and Simon P. Horslen


Cultural Bias in American Medicine: The Case of Infant Male Circumcision

    Brian D. Earp and David M. Shaw


Partial Survivors: The Brokenness of Intact Survival

    Paul C. Mann


If Truth Be Told: Paternal Nondisclosure and Neonatal Herpes Simplex Virus Infections

    William Sveen, Meera Sury, and Jennifer Needle


"An Opportunity to Fail": An Examination of Bias in Pediatric Resident Case Presentations

    Hellen Ransom and Ronald M. Perkin


The Ethical Implications of Bias in Counseling Parents of Children with Trisomy 13 and 18

    Rebecca J. Benson, Laura A. Shinkunas, and

    Joy Salls


Caregivers’ Bias and Communication at Patient

"Hand-Off": The Benefits of the Bring it Bedside Program

    Linda Lefrak and Rachael Lamsal


The Family Voice

Mother Love

    Perla Morley


Desperation. Exhaustion. Fear.

    Julie Martindale


Perfect "Children’s Parents"

    Stacy Holzbauer


Inside this Issue


Volume 1, Number 2, Winter 2019


Complexities of Communication in Pediatric Medicine

Introduction to the Issue
Maurice G. Sholas

Your Child Does Not Have Chronic Lyme Disease:

A Commentary on Communication, Beneficence, and Consent

Erin King


Pediatric Oncology Careproviders’ Attitudes on and Perceptions of Assent

Camille Lucjak, K. Jane Lee, and Kellie R. Lang


Difficult Conversations in the Ambulatory Pediatric Setting

Sheldon Berkowitz


Caring for Patients and Families in Challenging Circumstances: Preparing for and Engaging in Difficult Conversations

Theresa M. Huntley


A Critical Analysis of Futility Discourse in Pediatric Critical Care

Ian Wolfe


The Family Voice

Dads Are Parents, Too

Paige Schram


A Successful Failure

Beth Wakefield


Without Regret

Jennifer Wagner