Inside this Issue
Volume 1, Number 3, Spring 2020
Advance Care Planning and End of Life
Advance Care Planning and End of Life
Maurice G. Sholas
Features
Children’s Views on Death and Dying: An Overview and Ethical Focus on Advance Care Planning Communication with Children
Ashley Lanzel and Katharine E. Brock
Parental “Holding and Letting Go” in End-of-Life Decision Making in the Neonatal Intensive Care Unit
Lisa C. Freitag
Mature Minors, Mature Decisions: Advance Care Planning for Adolescent Patients with Life-Limiting Illness
Jennifer Needle, Maureen Lyon, Donald Brunquell, and Catherine Heith
Re-Examining the Ethics of Clinical Trial Approval in a Gene-Targeted Era through a Case-Based Approach: Exploring the Implications of the n = 1 Batten Disease Trial
Danielle G. Rabinowitz
The Family Voice
The Most Difficult Decision We Ever Had to Make
Kari Olavson
Precious Life; Precious Loss
Ellen Beaudry
Contact us
Children's Minnesota
Clinical Ethics Program
2525 Chicago Avenue South
Mail Stop: 17-750
Minneapolis, MN 55404
Inside this Issue
Bias in Pediatric Medicine
From the Editors
Nneka Sederstrom and Michael Sprehe
Features
Gatekeeping and Bias Against Pediatric Risk in Solid Organ Transplant
Aaron G. Wightman and Simon P. Horslen
Cultural Bias in American Medicine: The Case of Infant Male Circumcision
Brian D. Earp and David M. Shaw
Partial Survivors: The Brokenness of Intact Survival
Paul C. Mann
If Truth Be Told: Paternal Nondisclosure and Neonatal Herpes Simplex Virus Infections
William Sveen, Meera Sury, and Jennifer Needle
"An Opportunity to Fail": An Examination of Bias in Pediatric Resident Case Presentations
Hellen Ransom and Ronald M. Perkin
The Ethical Implications of Bias in Counseling Parents of Children with Trisomy 13 and 18
Rebecca J. Benson, Laura A. Shinkunas, and
Joy Salls
Caregivers’ Bias and Communication at Patient
"Hand-Off": The Benefits of the Bring it Bedside Program
Linda Lefrak and Rachael Lamsal
The Family Voice
Mother Love
Perla Morley
Desperation. Exhaustion. Fear.
Julie Martindale
Perfect "Children’s Parents"
Stacy Holzbauer
Inside this Issue
Volume 1, Number 2, Winter 2019
Complexities of Communication in Pediatric Medicine
Introduction to the Issue
Maurice G. Sholas
Features
Your Child Does Not Have Chronic Lyme Disease:
A Commentary on Communication, Beneficence, and Consent
Erin King
Pediatric Oncology Careproviders’ Attitudes on and Perceptions of Assent
Camille Lucjak, K. Jane Lee, and Kellie R. Lang
Difficult Conversations in the Ambulatory Pediatric Setting
Sheldon Berkowitz
Caring for Patients and Families in Challenging Circumstances: Preparing for and Engaging in Difficult Conversations
Theresa M. Huntley
A Critical Analysis of Futility Discourse in Pediatric Critical Care
Ian Wolfe
The Family Voice
Dads Are Parents, Too
Paige Schram
A Successful Failure
Beth Wakefield
Without Regret
Jennifer Wagner
