Inside this Issue

 

Volume 1, Number 4, Spring 2021

Children with Differences of Sexual Development

Intersex Children and Medical Epistemology: Moving from Interests to Rights

Ian D. Wolfe

 

Features

The Microethics of Informed Consent for Early Feminizing Surgery in Congenital Adrenal Hyperplasia

Katharine B. Dalke and Arlene B. Baratz

 

The Irrelevance of Data to the Ethics of Intersex Surgery

Samuel Reis-Dennis and Elizabeth Reis

 

The Family Voice

Our Beautiful Child
Anonymous Parents

 

Parenting Children Intersex Children: Sensitive Medical Care and Peer Support that Make the Difference

Anonymous Parent

 

Clinical Reports and Narratives

Genital Ambiguity at Birth: Ethical Issues in the Management of Children with Differences of Sexual Development, also Known as Intersex

Asma Fazal

 

Supporting Families: Lessons Learned from Parents’ Narrative Experiences

Abby Davis

Inside this Issue

 

Volume 1, Number 3, Spring 2020

 

Advance Care Planning and End of Life

Advance Care Planning and End of Life

Maurice G. Sholas

 

Features

Children’s Views on Death and Dying: An Overview and Ethical Focus on Advance Care Planning Communication with Children

Ashley Lanzel and Katharine E. Brock

 

Parental “Holding and Letting Go” in End-of-Life Decision Making in the Neonatal Intensive Care Unit

Lisa C. Freitag

 

Mature Minors, Mature Decisions: Advance Care Planning for Adolescent Patients with Life-Limiting Illness

Jennifer Needle, Maureen Lyon, Donald Brunquell, and Catherine Heith

 

Re-Examining the Ethics of Clinical Trial Approval in a Gene-Targeted Era through a Case-Based Approach: Exploring the Implications of the n = 1 Batten Disease Trial

Danielle G. Rabinowitz

 

The Family Voice

The Most Difficult Decision We Ever Had to Make

Kari Olavson

 

Precious Life; Precious Loss

Ellen Beaudry

 

Contact us

 

Hamdi.Sahal@ChildrensMN.Org

612-813-6169

 

Children's Minnesota

Clinical Ethics Program

2525 Chicago Avenue South

Mail Stop: 17-750

Minneapolis, MN 55404

Inside this Issue

 

Volume 1, Number 1, Fall 2017

 

Bias in Pediatric Medicine

From the Editors

Nneka Sederstrom and Michael Sprehe

 

Features

Gatekeeping and Bias Against Pediatric Risk in Solid Organ Transplant

    Aaron G. Wightman and Simon P. Horslen

 

Cultural Bias in American Medicine: The Case of Infant Male Circumcision

    Brian D. Earp and David M. Shaw

 

Partial Survivors: The Brokenness of Intact Survival

    Paul C. Mann

 

If Truth Be Told: Paternal Nondisclosure and Neonatal Herpes Simplex Virus Infections

    William Sveen, Meera Sury, and Jennifer Needle

 

"An Opportunity to Fail": An Examination of Bias in Pediatric Resident Case Presentations

    Hellen Ransom and Ronald M. Perkin

 

The Ethical Implications of Bias in Counseling Parents of Children with Trisomy 13 and 18

    Rebecca J. Benson, Laura A. Shinkunas, and

    Joy Salls

 

Caregivers’ Bias and Communication at Patient

"Hand-Off": The Benefits of the Bring it Bedside Program

    Linda Lefrak and Rachael Lamsal

 

The Family Voice

Mother Love

    Perla Morley

 

Desperation. Exhaustion. Fear.

    Julie Martindale

 

Perfect "Children’s Parents"

    Stacy Holzbauer

 

Inside this Issue

 

Volume 1, Number 2, Winter 2019

 

Complexities of Communication in Pediatric Medicine

Introduction to the Issue
Maurice G. Sholas

Features
Your Child Does Not Have Chronic Lyme Disease:

A Commentary on Communication, Beneficence, and Consent

Erin King

 

Pediatric Oncology Careproviders’ Attitudes on and Perceptions of Assent

Camille Lucjak, K. Jane Lee, and Kellie R. Lang

 

Difficult Conversations in the Ambulatory Pediatric Setting

Sheldon Berkowitz

 

Caring for Patients and Families in Challenging Circumstances: Preparing for and Engaging in Difficult Conversations

Theresa M. Huntley

 

A Critical Analysis of Futility Discourse in Pediatric Critical Care

Ian Wolfe

 

The Family Voice

Dads Are Parents, Too

Paige Schram

 

A Successful Failure

Beth Wakefield

 

Without Regret

Jennifer Wagner